It's hard to believe that autumn is almost upon us. We've had a great summer. Nathan's health has been good and we've seen progress in many areas.
Our time away at the beach wass lovely with time and warm weather to go for swims at the beach and have a play in the sand. I'm glad we purchased a little wetsuit for Nathan this year as it made his time in the water more enjoyable.
After spending time with extended family members Nathan has learnt many new party tricks. Beating his chest like tarzan, blowing raspberries on his arm and making grunting noises and imitating us playing tennis on the Wii.
The bottom shuffle has developed. He's now getting quite mobile around the house. A small step stops him from getting out of the back room and into the rest of the house but he has no problem going down this step.
We had out first escape the day. He was playing at the flywire door which I thought was shut. I was in another room when I heard the door bang. I ran to the door and found him sitting at the top of the stairs that go down to the lawn. The drop is a bit over a metre. He was so quick getting out the door. I'll have to make extra sure the doors are shut or even locked!
Thursday, February 19, 2009
Thursday, December 18, 2008
No more o2 at night
Nathan's oxygen has been turned off for two nights now. The respiratory specialist was pleased with his overnight oximetry test last Monday night. The plan is to now have it off for a month and see how he is going. Hopefully he will stay well and cope without it. I think I will feel more confident after a week of him being in air. It has helped that he has been in air for his day sleeps for a little while now. So I know that he can sleep comfortably in air.
I am so looking forward to cleaning out his room and getting rid of the tanks, tubes and tapes! All plans to set up his room as I woud have liked went out the window when he needed the oxygen as it takes up space. We still have a feeding pump on standby for when he doesnt cope with bolous feeds. It will be nice at some stage to be able to get rid of that too.
I am so looking forward to cleaning out his room and getting rid of the tanks, tubes and tapes! All plans to set up his room as I woud have liked went out the window when he needed the oxygen as it takes up space. We still have a feeding pump on standby for when he doesnt cope with bolous feeds. It will be nice at some stage to be able to get rid of that too.
Sunday, December 14, 2008
Collingwood Children's Farm
Was so nice to come back here again. Last time we were here Nathan was sick. He was wanting to chase the ducks and chickens around the yard. A poor guinea pig got a good squeeze. Nathan even milked a cow this visit. The lady helping said "He's got a strong grip!". A few squirts went into the bucket.
It was good to go with Aurora Early Intervention and learn a few more Auslan signs. I now know Auslan for farm, farmer and guinea pig!! All useful in everyday suburban life.
It was good to go with Aurora Early Intervention and learn a few more Auslan signs. I now know Auslan for farm, farmer and guinea pig!! All useful in everyday suburban life.
A trip to the zoo my darling
We took nathan to the zoo last week. It was so nice to go the day after his oxygen test. It was like a little celebration for us.
He loved the monkeys, orangatans an the butterflies. He wasn't overly interested in some of the other large animals. He seemed more interested in the fencing and landscaping! Perhaps it was because the mountain gorillas were in their cage due to cleaning, the lions were sleeping, the elephants were not running around and the giraffes were standing chewing on grass. The monkeys were swinging, the orangatans were playing and the butterflies flapped around and one even landed on daddy's shoulder.
It was a good morning out. A couple of hours were enough for him. We hot footed it around the zoo. We bypassed the reptiles and aussie animals but we saw most other things. We enjoyed it.
He loved the monkeys, orangatans an the butterflies. He wasn't overly interested in some of the other large animals. He seemed more interested in the fencing and landscaping! Perhaps it was because the mountain gorillas were in their cage due to cleaning, the lions were sleeping, the elephants were not running around and the giraffes were standing chewing on grass. The monkeys were swinging, the orangatans were playing and the butterflies flapped around and one even landed on daddy's shoulder.
It was a good morning out. A couple of hours were enough for him. We hot footed it around the zoo. We bypassed the reptiles and aussie animals but we saw most other things. We enjoyed it.
Fundoplication
Respiratory Doctor is keen for us to have Nathan booked in ASAP for a fundoplication. This where they take some stomach and tighten it around the oesophageous. Hopefully it will stop his ongoing reflux and vomiting.
I told him how we were feeding him such small amounts and the frequency and he asked me if we were doing this to avoid a fundo?? I guess we are doing what we can to avoid it. It is starting to seem that it may be a good option but we're not 100% sure yet. It is hard to know whether to wait and see if as he grows he will improve or to bite the bullet and get it done. We don't want him to have surgery if there is another way. It would be nice to wake up tomorrow and it's all better. I was a bit upset when the doctor was suggesting this as we have had such a good few months and I really didn't want to think about surgery and recovery time. It was a bit of a kick to how positive I was feeling about things. Have to try and look at this as a positive thing to improve his situation with his reflux.
Waiting for the gastro specialist to call us and have a chat again. We were booked to see him in March but that is not soon enough apparently.
I told him how we were feeding him such small amounts and the frequency and he asked me if we were doing this to avoid a fundo?? I guess we are doing what we can to avoid it. It is starting to seem that it may be a good option but we're not 100% sure yet. It is hard to know whether to wait and see if as he grows he will improve or to bite the bullet and get it done. We don't want him to have surgery if there is another way. It would be nice to wake up tomorrow and it's all better. I was a bit upset when the doctor was suggesting this as we have had such a good few months and I really didn't want to think about surgery and recovery time. It was a bit of a kick to how positive I was feeling about things. Have to try and look at this as a positive thing to improve his situation with his reflux.
Waiting for the gastro specialist to call us and have a chat again. We were booked to see him in March but that is not soon enough apparently.
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